(CNN) — In Los Angeles, the Make-A-Wish Foundation granted the request of a young boy with a rare genetic disorder — and he plans to pay it forward to the hospital that’s helped him.
“Look! I have another helicopter piece!” Dylan Prunty said.
Two things keep eight-year-old Dylan Prunty busy — according to his mom: The doctors at Children’s Hospital Los Angeles and Legos.
“It’s magical. I never thought that a brick would bring so much happiness to my child,” Kapka Prunty said.
Dylan’s life-savers were combined when the Make-A-Wish Foundation granted him a wish.
He asked for Lego masters to design a Lego replica of the hospital — complete with a helicopter pad, a cafeteria, a gift shop and even an operating room!
“They saved my life, and we life here,” Dylan said.
Over the past two years, Dylan has spent more time at Children’s Hospital Los Angeles than he has at home.
He is being treated for mitochondrial disorder.
Mitochondria are responsible for creating 90% of the energy the body needs to sustain life.
It presents differently in every child.
In Dylan’s case, his immune and digestive systems don’t work well.
The little boy hasn’t eaten solid food in two years — and he is plagued by kidney stones.
“Usually it takes three months to a year for someone to develop a kidney stone.
“Dylan makes them sometimes in minutes, hours, days. He can pass up to a hundred kidney stones a day,” Kapka Prunty said.
That’s where the Legos come in.
“It distracts from the pain, and it’s like the best pain medicine,” Dylan said.
Dylan’s Lego-building skills have far surpassed his peers.
Even his doctors are in awe.
Amongst the 4,000 or so Legos that make up the Lego hospital — there are Lego versions of some of his favorite people — including Dr. Mimi Kim.
Dylan says he didn’t just wish to build the hospital because he liked Legos.
“So we could raise money for more research,” Dylan said.
It’s something his doctors say mitochondrial disease desperately needs.
“To consider the number of patients diagnosed with mitochondrial disease, and the much larger number of patients that we suspect are there that don’t have a diagnosis yet, the number of dollars per patient is extremely small. I mean, mitochondrial disease in children is more common than childhood cancer,” Dr. Kim said.
Dylan’s prognosis is unclear.
He’s the only known child in the world who has this type of mitochondrial disorder.
His mother says he dreams of living a normal life.
“I wish I could take it all away,” Kapka Prunty said.
But until then, he builds — and builds some more.